Hi, I’m Pam. Person, parent, periodic professional, pretty dependable partner to husband Rick.
These writings are my musings on life with Alzheimer’s disease in the house. The site is for my personal benefit, a secret pressure valve or sorts. Of course in my fantasies I become wildly popular and people flock to read, comment and support my writings. From there we form an amazing, smart and funny community and solve all the problems of dealing with lost keys and misplaced dishes. To add perspective I also fantasize about being able to rock climb, run 26 miles and, most of all, becoming Helen Mirren when I grow up.
In reality even if I did tell my friends about this site, and they told their friends and so on, the interested audience is limited. Approximately 200 thousand people in the United States have younger onset Alzheimer’s disease. It’s a pretty small group.
If you’d like to receive the blog via email sign up here
Early in my journey with Rick and his Early Onset Alzheimer’s disease I would spend time and energy in sorrow. I would think of how things had been, and how I thought life should be at my age. The lapses in judgment, memory, and logic would really get me down.
I started this site to focus on and record memories that have been enjoyable and foundational in our relationship. When I first wrote I discovered a few things: 1) These musings helped to strengthen my bond to Rick in a positive way – reminding me of why we are here together. 2) I was much more positive toward almost everything, and therefore less stressed. 3) The impact of the dementia-induced behaviors was minimized. After all, what is a table set only with spoons by someone who kept you safe on a mountaintop?
Then I slowed down, life became a bit harder. It has become more difficult to be positive, and the positivity felt a bit fake. I have been writing less. But I have hope.